DEBRA Butterfly Skin is the only nationwide support organization dedicated to improving the daily lives of families with a member affected by this disease.
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Butterfly Skin is a:

Rare

Genetic

Painful

Disease

Lack of
‘Skin Glue’’

The skin has proteins between its different layers that act as a glue, making it resistant to bumps and friction. People with Epidermolysis Bullosa, commonly known as Butterfly Skin, lack some of these essential proteins, which is why they must bandage their bodies almost daily. These painful treatments, which can take anywhere from one to four hours, are necessary to protect the wounds and blisters caused by even the slightest touch.

You can learn more about the disease and the work DEBRA does by visiting their website:

DEBRA Piel de Mariposa

DEBRA & 'igare'

This is the fifth consecutive year that I have organized charitable events in support of the association.

As always, all funds raised through the IGARE challenge will once again be donated to DEBRA.

What does IGARE consist of?

Collaborate

With your help, you can make life a little easier for more than 300 families.

We have created a crowdfunding campaign on “Mi Grano de Arena”, where you can make your contribution:

Make a donation